via Pinterest |
My typical "smoothie of the day": Usually packed with fresh and frozen berries, mixed greens, cucumber slices, lemon slices (no rind), banana, and water |
via Pinterest |
My typical "smoothie of the day": Usually packed with fresh and frozen berries, mixed greens, cucumber slices, lemon slices (no rind), banana, and water |
Keeley, thank you for sharing your story, so that others can have a glimpse into the world of having an invisible illness. I relate so much to this post and am on the same journey of trying to find the magic "Selena Diet" that will work best with my particular body chemistry. Good luck on your quest to find your magic "Keeley Diet"! ((gentle hugs)) I can't wait to see you in Las Vegas!
ReplyDeleteInvisible disability is so hard to live with and so hard to share with others. Thank you for putting this out there and I hope your continued journey is not a difficult one. You are such a sweet person - even though you are wrestling with so much personally you still bring a lot of happiness to others Keeley! Thank you for being you!
ReplyDeleteIts wonderful you are able to share your journey and how you've taken hold of your health! My dad has MG and explaining what it actually is it to people is really hard! Trying to get him to be proactive in his health is even harder. Thanks for sharing!
ReplyDeleteI have been living with MG for 5 years now. I have the ocular type with very high antibody count that makes me have symptoms more like generalized MG. Your story sounds much like mine. People have judged me, called me lazy, and accused me of abusing drugs, etc. Nobody understands how hard it is to live with this illness. Especially since it is an "invisible" disease. Thank you touch for sharing your story. I will be receiving IVIG soon. I never thought about changing my diet. It is great advice. Will let you know my results in a few months!
ReplyDeleteThanks so much for sharing your story, Keeley. It will help so many! And as I said on FB, I'm so glad that living gf/df made such a difference for you. Hoping that you'll continue to improve, dear. Sharing your post ...
ReplyDeletexo,
Shirley
Keeley, I don't have MG, but I do have a host of other autoimmune conditions and I can really relate to everything you said. It's hard when an illness is invisible because people can't relate to it {though I obviously wouldn't want a visible illness either!}. I often feel like if you were in a wheelchair people would treat you so differently, but because you're not people just perceive your behavior like you said as perhaps lazy, weak, irresponsible, irrational, attention-seeking, etc. And I can understand where they're coming from to an extent because had I not had the experience I now have I probably would have no idea how difficult it is to function with these invisible illnesses. I don't really expect anyone to ever be able to understand exactly what I'm experiencing, but I do feel like raising awareness can help so that people can at least have a clue and know that what you are experiencing is real and is difficult.
ReplyDeleteI think the same goes for all judgments of others really -- for instance it's so easy to get frustrated at "a bad driver", but you have no idea what the person in that car is actually experiencing. Perhaps they are indeed a bad driver, but perhaps they are having a moment of intense pain, or perhaps they've been up all night because the outwardly invisible swelling throughout their whole body that is making it impossible for them to get any rest, or perhaps they were served some autoimmune-triggering food over lunch by accident and are now experiencing a loss of vision or "brain fog", etc. It's just one example, but it's a reflection I've been making in myself -- so easy to judge people and jump to conclusions without knowing the full story.
Thanks for sharing!
Keeley,I'm so glad I found your post. 2 days ago my eyelid started drooping. I was so scared. Fortunately I know a optometrist who lives in my building. He looked at it and suspected it was MG. He has referred me to a neurological opthomologist who I hope to see next week. My husband & I have just now committed to go gluten-free. I'll probably make some more changes in my diet. What medications have you been on? Any other advice? I guess we're all scared of the unknown. Thank you.
ReplyDeleteKeeley,I was just diagnosed with MG. I'll be seeing a neurological opthomologist hopefully next week. My eyelid drooped and blurred my vision. I have a neighbor who is a optometrist who suspected it was MG. My husband &I have committed to go gluten-free. I'll probably change the things in my diet as well. I also have LS so I guess I'm prone to autoimmune diseases. What medications are you on? Any other warnings or advice for a scared 65 yr old woman? I recently moved to Chicago from RI to be near my grandchildren but I haven't established a medical network here yet. This is so scary. My oldest brother had MG for about 5 years before he died (from renal failure & diabetes, not MG). I saw him suffer. I don't think he was his own best advocate. I plan on taking this much more seriously than he did. Thanks for sharing.
ReplyDeleteKeeley,I'm so glad I found your post. 2 days ago my eyelid started drooping. I was so scared. Fortunately I know a optometrist who lives in my building. He looked at it and suspected it was MG. He has referred me to a neurological opthomologist who I hope to see next week. My husband & I have just now committed to go gluten-free. I'll probably make some more changes in my diet. What medications have you been on? Any other advice? I guess we're all scared of the unknown. Thank you.
ReplyDelete